Support Groups Across The Country
Alabama
*Ozark, AL
Contact: Pam Holmes
334-445-0760
Email: pamjh@charter.net
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Arizona
*Pheonix, AZ
Contact: Shelley Norris
480-893-3951
*Chiari and Syringomyelia Network
Scottsdale, AZ and Mesa Main, AZ
480-350-7177 or 866-661-7607
Email: csinfo@chiarisn.org
Website: www.chiarisn.org
*Az Syringo Chiari Support Group
Contact: Debbie Juengel or Sianna Contreras
Phone: 623-561-6906
Email: AzSyringoChiari@cox.net
www.AzSyringoChiari.blogspot.com
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California
*Orangevale, CA
Contact: Lisa Yates
916-214-3839
Email: destinyclergyservices@yahoo.com
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Georgia
*Stockbridge, GA
Contact: Katherine Hart
404-944-6887
Email: pastorkathi@gmail.com
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Illinois
*Chicagoland Chiari Support Group
Arlington Heights, IL
Contact: Carolyn Richardson
Email: Carolyn.J.Richardson@gmail.com
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Indiana
*Evansville, IN
Contact: Bryan
812-426-0310 (Best to call between 7-10pm)
Email: ellisparkhorse@yahoo.com
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Iowa
*Ames, IA
Contact: Sheryl Andre
515-233-4292
Email: sheryl.andre@gmail.com
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Kansas & Missouri Areas
*Manhattan, KS
Contact: Jayne Link
785-776-5392
Email: prairielink@prodigy.net
*4-State Chiari Support Group
Contact: Angie Lawrence
414-439-9071
Email: chiarisupporter4@gmail.com
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Kentucky
*Brooks, KY
Contact: Jean Kinsey
502-955-6417
Email: mjkinsey@alltel.net
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Maryland
*Edgewood, MD
Contact: Nancy Young
410-538-4521
*ACMSM of Washington County Maryland
Contact: Paula Crammer
301-991-6960
Email: Classee4u@gmail.com
Group Home Page:
http://groups.yahoo.com/group/ACMSMofWashingtonCountyMaryland
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Michigan
*Otisville, MI
Contact: Cindy Dellamater
801-631-6775
Email: Hogan810@cs.com
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Minnesota/Western WI
*Midwest ASAP Connection
Contact: 763-795-9980
Contact: Judy Hunt
Email: Judy_Hunt@ASAP.org
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Montana
*ChiariPeople of Montana
Billings, MT
Contact: Julie Carter
Email: Julie@chiaripeople.org
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New Jersey
*Southern Ocean Jersey Chiari Support Group
Little Egg Harbor, NJ
Contact: Christine Mrchesano
609-812-0515
Email: Christine@marchesano.org
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New York
*Northeast Chiari Support
Copake, NY
Contact: Jodie Churchill
518-329-6152 or 518-610-1691
Email: sortheastchiarisupport@hotmail.com
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Ohio
*Marion,OH
Contact: Karen McCann
740-383-4363
Email: kimpsm@aol.com
*ChiariPeople of Ohio
Mantua, OH
Contact: Nicole Hutnik
440-840-3354
*Ohio Parents w/Children with CM/SM Support Group
Contact: Sherri Ketchesin
Email: ketch16@yahoo.com
*Mason, OH
Contact: Ray D'Alonzo
513-622-1977
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Oregon
*Spina Bifida Assoc
This is not directly a Chiari support group, but the majority of members have Chiari.
Email: spinabifidaassocoregon@yahoo.com
Website: http://www.freewebs.com/spinabifidaassocoregon/
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Pennsylvania
*Lehigh Valley Support Group
Bethlehem, PA
Contact: Denise
Email: greythndz@yahoo.com
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Tennessee
*Dickson, TN
Contact: Stephanie White
615-740-0202
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Texas
*Ozark, AL
Contact: Pam Holmes
334-445-0760
Email: pamjh@charter.net
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Washington
*Syringomyelia Northwest Support Group
Edmonds, WA
Contact: Michele McGraw
425-742-0982
Email: michelelm@verizon.net
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If you have a support group and it's not listed here, please email me mruth@chiaripeopleofpa.com and I will add your group to our list.